Shahira Mohamed and sister Nasreen wear oxygen masks to keep them alive while they sleep.
Both were born with the congenital disease myasthenia gravis, meaning they need to take muscle-strengthening medication. This rare condition affects the nerves that supply the muscles around the body. Its precise cause is unknown but it affects one in every 10,000 people. Shahira, from Woolwich, had never enjoyed a holiday until, aged 11, she visited Demelza House. She had grown up only knowing the noisy streets around her home in London. Wheelchair-user Shahira, now 19, saw rabbits and squirrels for the first time and now visits the hospice with Nasreen, nine, every two months. Shahira describes the hospice garden as "like a fairytale". The teenager and her sister have also made firm friends with other children there.
"The garden goes on for ever and is full of butterflies, it really takes you away from reality. When me and my sister stay there my mum gets a break — last year my mum visited her family in Dubai for the first time in years. It also gives her a chance to look after my brother. I don't see it as a hospice, it's more of a holiday. The staff really help you do whatever you want, like going to a beauty salon."